ALS aka Lou Gehrig's Disease took my father in December 2010. His dream was to live long enough to see the day ALS research discovered a cure...7 1/2 yrs just wasn't long enough.
The compassion he had inside towards helping others so that maybe they wouldn't have to go through the pain and suffering he had experienced made him determined to do his part in contributing to ALS research and finding a cure...even after his death.
I continue his quest in raising awareness, support in the ALS community and with fund raising events... Never Giving Up, Keeping The Faith, Hoping For a Cure...ALS AWARENESS <3
My Blog is all who i am... my loves, my life, my thoughts, my past, my wants, my passions, my memories, my hurts, my fears and ALS awareness and my kids <3/div>
I’m almost positive that I have ALS. I’m a mom to an 8 year old boy and I’m having trouble trying to wrap my mind around the idea of leaving him so soon. I haven’t been diagnosed with it yet, but I have a lot of the classic symptoms; ones that aren’t generally seen in other neurological disorders….
Hi Hella Drea,
You need to begin your testing to rule out all the other disease that mimic ALS. It was almost a year before we got the final diagnoses. It is very important that you do this. I know how scared you are but if you don’t the progression could cause problems that you might realize it’s doing. I know that had my father not been diagnosed he was that within a few months he would no long be able to ingest food and would have starved to death. Within a few weeks, they placed a peg in his abdomen so he would be able to get the nutrients needed. We were his caregivers from the start and for 7 1/2 years he never gave up for an instant. He said that he was glad he was the one who got ALS and not any of us because he could handle it better. December 9th was a year since my dad passed away and I am continuing his mission to raise awareness, fundraising and supporting my ALS family. We have a community on FB that was brought together in May 2011 by 2 radio personalities here in Houston but their show is heard all over the southern states and they can be heard via webcast . I listened to them every morning for over 5 years and on this morning they showed their true ignorance and began making horrible remarks about Stephen Hawking who has ALS. I was devastated hearing the remarks and making jokes about his disability. I immediately got on facebook when i got back to the house and posted the things i had just witnessed being said. My tears of hurt began turning to anger so i then went to Walton and Johnson’s website posted exactly what i thought about it as well as other who has heard it and did just like i had. Well, this spread like wildfire in the ALS/MND community and within a hour or 2, we had pALS, family, friends, caregivers from all over the world making sure Walton and Johnson know they would not be getting away with their behavior!!! We all got banned one by one from W&J webpage and we all got together on FB and before long we had The ALS Facebook Family. You’re welcome to add me to your FB and you can get to know the others. You can get just about get every question you need answered through someone there and the resources you’ll have are amazing. Here’s my FB link, just take out the “?” marks and add me. Keep the Faith! http?s://?ww?w.face?book.co?m/shel?leyd?woodward
